Bethany Purnell de 20 años sufre la enfermedad de Crohn, provoca que sufra fatiga, dolor abdominal, incontinencia fecal, diarrea e inflamación crónica del intestino.
Por esta razón, las fotos que publica en su cuenta de Instagram no son las que suelen subir las chicas de su edad. Bethany publica imágenes de su condición con la finalidad de crear conciencia sobre su enfermedad.
View this post on InstagramADVERTISEMENT ADVERTISEMENT Yes, essentially it's a bag full of poop.
But to me, it's much more than 'a bag full of shit. ' I have to wear this bag on my body for the rest of my life. Forever. No going back, ever. So to me, it's much more than a 'gross shit bag' that it's been referred to multiple times.ADVERTISEMENT I just need to get this off my chest, everybody poops- GET OVER IT.
Every single living thing poops. . I just do it slightly differently. Also, this Ostomy bag is a symbol of my strength. It is a symbol of my courage. It is a symbol of my bravery and what I have had to go through battling with such an ongoing and debilitating disease.ADVERTISEMENT So when I go onto twitter and I see people calling Donald Trump a 'walking colostomy bag,' I simply think what a privilege Donald Trump would be to be on my awesome body!! When I see student nurses complaining about emptying a 'colostomy' bag, I hope to God they have a wake up call and realise that wiping a tiny bit of plastic on the end of a bag is the least of their worries when becoming a Nurse.
ADVERTISEMENT I got my Ostomy bag 2 years ago, when I was 17 years old after battling Crohn's Disease since I was just 10 years old.
. My life is hard enough without others using my illness and my medical appliance as an insult. Ostomy bags should NOT be seen as an insult.ADVERTISEMENT It should not be seen as a 'shit bag' a 'bag full of shit' or anything else but a sign of my bravery & strength.
EVERYBODY poops, stop acting like a child and sorry for my language but. . get the fuck over it!! There's even a poop emoji for crying out loud, why is there still a massive taboo on poo when we even have an EMOJI dedicated to the little guy!?!? ??? #myillnessisnotyourinsultADVERTISEMENT
A Beathany le practicaron una Ileostomía, es una intervención médica que consiste en extraer una sección de su colon a través de su abdomen. De esta manera permite que las heces se depositen en una bolsa.
View this post on InstagramADVERTISEMENT No matter how many times it’s failed me and put me through shit, it always finds a way of still standing strong.
In 2015, I dropped down to 6st 4 (88lbs / 40kg) and was unable to eat or drink anything without throwing up. . My body gave in and I passed out.ADVERTISEMENT .
Luckily, I passed out in hospital & my mother had to pull the emergency cord and doctors came running in and carried me over to the triage room to pump fluids into me to try and hydrate my poor body. In 2016, I had surgery to remove an abscess and part of my very infected intestine.ADVERTISEMENT Whilst I was recovering, my heart rate shot up to 250-300bpm and SO many nurses rushed around me to hook me up to an ECG and Oxygen.
In 2017, I had an allergic reaction to infliximab (Remicade). It was my third time retrying the drug and unfortunately my body had a reaction to it and I went supper hot and sweaty and I couldn’t breathe.ADVERTISEMENT Once again, there were so many nurses around me and I had to be stabbed with adrenalin to save my life.
Over the years, my body has almost given up on me… but it’s held on to the last chance of hope! Somehow my body found a way to fight through all these difficult times.ADVERTISEMENT Even though my body is fighting itself and my immune system hates itself, my body still manages to try it’s very hardest to work as best as it possibly can.
My body may be defected, it may not be perfect, it may not be as healthy as others, but it’s MINE and I’m super proud of it for being so strong ☺️ADVERTISEMENT
Bethany confesó su miedo:
“Una de mis mayores preocupaciones antes de hacerme mi bolsa de ileostomía era que se notara a través de mi ropa”.
View this post on InstagramADVERTISEMENT ADVERTISEMENT She is such a generous and sweet person who goes out of her own way to create beautiful Ostomy covers for FREE! How incredible is she to take the time to help others? A lot of people find it hard coming to terms with their bags.
. They think they're ugly and all sorts of (untrue) things.ADVERTISEMENT .
So it means SO much to me that she takes time out of her days to create these beautiful 'art work' to help and support others. You are incredible girl!!! From the bottom of my heart, thank you! And I thank you from every single other person in this Ostomy community because of how much time and effort you put into helping others, raising awareness and just being your amazing self! Honestly, thank you! I really do feel like a Super Girl! ?ADVERTISEMENT
“Investigué mucho sobre el tema. Descubrí consejos y trucos para ocultar la bolsa, pero después de que la hice no estoy tan preocupada por si se ve. Estoy orgullosa de mi cuerpo”.
“Siempre he sido abierta y honesta sobre mi bolsa. Cualquier pregunta siempre es bienvenida. Nunca he recibido un mal comentario sobre mi situación”.
View this post on InstagramADVERTISEMENT I'm genuinely proud of myself and my body for handling all that has been thrown at it.
I've never hidden away, I've always worn what I wanted and I've always been proud. I have always been open and honest about my bag and any questions are always welcome.ADVERTISEMENT Personally I've NEVER had a bad comment made about me/my bag.
I'm going on holiday in just over a week and I've never been in the pool, in boiling hot heat or even had my Ostomy on shown in public. This is the first time and I'm nervously excited to see how it goes.ADVERTISEMENT I'm excited to finally have a holiday without trying to ask someone who doesn't speak good English to URGENTLY use their toilets and explain why.
Although my Ostomy has brought on a few new anxieties, it's gotta be better than… well… shitting yourself abroad ?ADVERTISEMENT
“Próximamente me iré de vacaciones y nunca he estado en una piscina. No tengo pena de mostrarme tal como soy, incluso de enseñar mi ostomía (apertura para un órgano). Estoy nerviosamente entusiasmada por ver cómo resulta”.
View this post on InstagramADVERTISEMENT He's accepted and loved me for who I am and says he wouldn't change me for the world.
I'm very very lucky and grateful to have him by my side! He lifts me up and always looks out for me and cares for me. I'm extremely glad that I got to share this experience with him.ADVERTISEMENT I wouldn't choose to do it with anybody else ? @williamjaketaylor ?
“Hasta este momento de mi vida tendré unas vacaciones sin tener que explicar a alguien que salga rápidamente del baño para que yo pueda usarlo”.
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Bethany ha decidió enfrentar con valentía su enfermedad. En las redes sociales sus seguidores han dado muestras de cariño y admiración.
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